Rare Dementia Support runs specialist support services for individuals living with, or affected by, one of five rare dementia diagnoses.

The five rarer forms of dementia that we support are:


Watch out for these upcoming events:

Annual FTD Seminar 2017

Date: Thursday 2nd March 2017
Location: The Basement Lecture Theatre
33 Queen Square, London. WC1N 3BG.
Time: 9.30am – 4pm


An overview of FTD Dr Matthew Jones, Consultant Neurologist, Salford Royal NHS Foundation Trust

Sexuality and Intimacy: The impact of a dementia diagnosis Dr Jane Youell, Chartered Psychologist and Dementia Specialist

The use of lumbar punctures for the diagnosis of, and research into, dementia and FTD Dr Ione Woollacott, Neurology registrar, Dementia Research Centre, UCL

Understanding FTD through blood and spinal fluid measures Dr Jon Rohrer, Consultant Neurologist, Dementia Research Centre, UCL

‘What’s On Your Mind..?’ A question and answer session Prof. Nick Fox, Director, Dementia Research Centre, UCL

Interaction-focused Life Story Work in Semantic Dementia Dr Jackie Kindell Speech and Language Therapist, The University of Manchester

Frontotemporal Dementia: A personal perspective Shaheen Larrieux

Cost:  (Including lunch) £75 for professionals | £10 family members | concessions available


London PCA Support Group Meeting Friday 24th March 2017

Time: Please arrive from 10.30am for tea and coffee. The meeting will start at 11am and finish at 2pm. 
Agenda: To be confirmed.
Location: The meeting is going to be held at The Wellcome Trust, Gibbs Building, 215 Euston Rd, Kings Cross, London NW1 2BE

**Please note this venue is not the same as The Hub at the Wellcome Collection, but is the building next door**

(more details regarding times, location and agenda, as well as past events, can be found here: upcoming events)


More dates for 2017….

Wednesday 29th March 2017 – Bereaved Carer’s Support Group Meeting, London
Thursday 27th April 2017 – PPA Support Group Meeting, London
Saturday 13th May 2017 – Joint fFTD and FAD Support Group Meeting, London

Further information regarding location and agenda will be confirmed in due course – please check back.

Our vision is for all individuals with or at risk of one of these rarer forms of dementia to have access to specialist information, support and contact with others affected by similar conditions.

Rare Dementia Support is a fund held by The National Brain Appeal (registered charity number: 290173).