Rare Dementia Support runs specialist support services for individuals living with, or affected by, one of five rare dementia diagnoses.

The five rarer forms of dementia that we support are:

Watch out for these upcoming events:



Monday 12th June 2017

Time: Arrival from 10:30 for tea and coffee. The meeting will start at 11:00 and finish at 14:00. A light sandwich lunch will be provided. (Please advise us of any special dietary requirements you may have and we will endeavour to accommodate these accordingly. Vegetarian options will always be available).

Location: The Hub (5th Floor), The Wellcome Collection, 183 Euston Road, London NW1 2BE

Directions: https://wellcomecollection.org/visit-us/getting-here. On entering The Wellcome Collection building, you will find the lifts on the left-hand side in the lobby area, just past the visitor welcome desk. Please take the lift to the 5th floor. On arrival at the 5th floor, turn left and you will find the entrance to The Hub.

Agenda: To be confirmed.


For information, support and advice about a rare dementia diagnosis please email Rachel.
For information about attending one of our support group meetings, or to RSVP, please email Janette.

(past event details and forthcoming fundraising/meetings can be found here)


More dates for 2017….

Monday 12th June 2017 – FTD Carers Support Group Meeting, London
Thursday 6th July 2017 – Recently Bereaved Support Group Meeting, London
Friday 14th July 2017 –
PCA Support Group Meeting, London

Further information regarding location and agenda will be confirmed in due course – please check back.

Our vision is for all individuals with or at risk of one of these rarer forms of dementia to have access to specialist information, support and contact with others affected by similar conditions.

Rare Dementia Support is a fund held by The National Brain Appeal (registered charity number: 290173).