Rare Dementia Support runs specialist support services for individuals living with, or affected by, one of five rare dementia diagnoses.
The five rarer forms of dementia that we support are:
Time: Please arrive from 10.30am for tea and coffee. The meeting will start at 11am and finish at 2pm.
Location: The Hub, 5th Floor, The Wellcome Collection, 183 Euston Road, London. NW1 2BE.
Agenda: ‘Julian West and students from the Royal Academy of Music, will lead us in a morning of music’.
Julian West is part of the core team to be invited by the Wellcome Trust to take up the 2016-18 residency in The Hub at the Wellcome Collection. The group, which includes scientists, artists, clinicians, public health experts and broadcasters, is examining and challenging perceptions of dementia through scientific and creative experimentation.
Over the last 20 years, Julian West has combined a career as an oboist with developing ground-breaking creative learning and participation projects for many organisations, including Wigmore Hall, Glyndebourne Opera, Britten Sinfonia and Spitalfields Music.
Julian remains at the forefront of the development of this field of work. Alongside a busy freelance career, he is currently Head of Open Academy, the Royal Academy of Music’s creative learning and participation programme, where he lectures on creative music leadership and researches into best practice, as well as devising and leading exciting projects with some of the world’s most talented young musicians.
After lunch, Dr Jon Rohrer, Consultant Neurologist from the Dementia Research Centre will present ‘An Update and Opportunity for Questions’ session.
To RSVP for any of our support group meetings, please email: email@example.com or J.Junghaus@wellcome.ac.uk
(past event details and forthcoming fundraising/meetings can be found here)
Further information regarding location and agenda will be confirmed in due course – please check back.
Our vision is for all individuals with or at risk of one of these rarer forms of dementia to have access to specialist information, support and contact with others affected by similar conditions.
Rare Dementia Support is a fund held by The National Brain Appeal (registered charity number: 290173).