Rare Dementia Support runs specialist support services for individuals living with, or affected by, one of five rare dementia diagnoses. Our vision is for all individuals with or at risk of one of these forms of dementia to have access to information, support and contact with others affected by similar conditions.

The five rarer forms of dementia that we support are:

familial Alzheimer’s disease (fAD)
frontotemporal dementia (FTD)
familial frontotemporal dementia (fFTD)
posterior cortical atrophy (PCA)
primary progressive aphasia (PPA)

Thursday 28th September 2017

To mark FTD Awareness Week (24th September – 1st October 2017), Rare Dementia Support will be hosting an ‘Evening Music Event’ in London
Time: 17:30 – 20:00

More details will be confirmed in due course

Autumn 2017 Support Group Meetings:

To be confirmed – please check back

Contact Information

For information, support and advice about a rare dementia diagnosis (including regional support groups), please email Rachel.

For information about attending one of our London support group meetings, or to RSVP, please email Janette.

(past event details and forthcoming fundraising/meetings can be found here)

Please note that you assume full responsibility and risk in the use of information contained on our website, in our newsletters, at support group meetings and in subsequent correspondence. Our support group based correspondence is generic in nature and we are limited in our ability to offer specific advice via this means. We aim to ensure that all information is as accurate as possible but we accept no responsibility for any errors, omissions or inaccuracies, or for any adverse consequences of any kind arising from the use of support group based content. Our regional group facilitators are volunteers. They may refer to regional facilitator guidelines from RDS but are not governed by RDS. They operate independently and with best intention and you assume full responsibility for your contact and engagement with them and in the regional groups they facilitate. Please see the clinician responsible for your care, a social services representative, or your GP if you have specific needs which require attention. Any medical decisions should be taken in discussion with an appropriate health care professional. Rare Dementia Support is a fund held by The National Brain Appeal (registered charity number: 290173).