Rare Dementia Support runs specialist support services for individuals living with, or affected by, one of five rare dementia diagnoses.
The five rarer forms of dementia that we support are:
Time: Arrival from 10:30 for tea and coffee. The meeting will start at 11:00 and finish at 15:00. A light sandwich lunch will be provided. (Please advise us of any special dietary requirements you may have and we will endeavour to accommodate these accordingly. Vegetarian options will always be available).
Location: The Hub (5th Floor), The Wellcome Collection, 183 Euston Road, London NW1 2BE
Directions: https://wellcomecollection.org/visit-us/getting-here. On entering The Wellcome Collection building, you will find the lifts on the left-hand side in the lobby area, just past the visitor welcome desk. Please take the lift to the 5th floor. On arrival at the 5th floor, turn left and you will find the entrance to The Hub.
11:00 Welcome Prof Nick Fox, Director of the Dementia Research Centre
11:10 – 11:40 Current Trials in Familial Dementia Dr Catherine Mummery, Consultant Neurologist, Dementia Research Centre
11:40 – 12:40 Facilitated Discussion – Trial Designs: How they are run, ethics, blinding and any questions Prof Nick Fox
12:40 – 13:00 Created Out of Mind: Shaping Perceptions of Dementia Through Art and Science Prof Sebastian Crutch, Director, Created Out of Mind, and Neuropsychologist, Dementia Research Centre, UCL
13:00 – 14:00 LUNCH During lunch, guests will have the opportunity to engage in various Created Out of Mind arts and research activities
14:00 – 15:00 Guests are invited to join the relevant group for a dementia-specific discussion session:
15:00 Formal Close Prof Nick Fox & Dr Susie Henley
RSVP: If you would like to attend this meeting, we kindly request that you RSVP by Tuesday 9th May. We fully appreciate that your circumstances can change nearer the time; should you no longer be able to attend after registering, please let us know.
To RSVP for any of our support group meetings, please email: email@example.com or J.Junghaus@wellcome.ac.uk
(past event details and forthcoming fundraising/meetings can be found here)
Further information regarding location and agenda will be confirmed in due course – please check back.
Our vision is for all individuals with or at risk of one of these rarer forms of dementia to have access to specialist information, support and contact with others affected by similar conditions.
Rare Dementia Support is a fund held by The National Brain Appeal (registered charity number: 290173).