Home

Rare Dementia Support runs specialist support services for individuals living with, or affected by, one of five rare dementia diagnoses. Our vision is for all individuals with or at risk of one of these forms of dementia to have access to information, support and contact with others affected by similar conditions.

The five rarer forms of dementia that we support are:

familial Alzheimer’s disease (fAD)
frontotemporal dementia (FTD)
familial frontotemporal dementia (fFTD)
posterior cortical atrophy (PCA)
primary progressive aphasia (PPA)


 

 Forthcoming London Support Group Meeting Dates

To allow us to make appropriate provisions, we kindly ask you to confirm your attendance at any of the meetings outlined below. To RSVP, please email Laura on  l.king@wellcome.ac.uk

We kindly ask all members to note that despite our best intentions, it may at times be necessary to change the dates of planned meetings. Therefore, we hope that the below acts as a guide helping you to pencil the dates into your diaries, but we will always give at least a month’s notice with the finalised dates.

 

2018

JANUARY

FTD Support Group Meeting
Date: Wednesday 17th January
Location: The Hub, 5th Floor, Wellcome Collection, 183 Euston Road, London NW1 2BE.
Time: 11:00 – 14:00, arrival from 10:30

FEBRUARY

Bereaved Carers Support Group Meeting
Date: Thursday 8th February
Location: The Hub, 5th Floor, Wellcome Collection, 183 Euston Road, London NW1 2BE.
Time: 10:30 – 12:30

PCA Support Group Meeting
Date: Friday 23rd February
Location: The Hub, 5th Floor, Wellcome Collection, 183 Euston Road, London NW1 2BE.
Time: 11:00 – 14:00, arrival from 10:30

MARCH

  • Regional Facilitators Training Day
    Date: Thursday 22nd March
    Location: The Hub, 5th Floor, Wellcome Collection, 183 Euston Road, London NW1 2BE.
    Time: 13:00 – 17:00,  arrival from 12:30

 

FTD Annual Seminar 

Date: Friday 23rd March
Location: 6th Floor, Wellome Trust, Gibbs Building, 215 Euston Road, London, NW1 2BE
Time: 09:30 – 16:00, arrival from 09:00

APRIL

PPA Support Group Meeting
Date: Wednesday 11th April
Location:  6th Floor, Wellcome Trust, Gibbs Building, 215 Euston Road, London NW1 2BE.
Time: 11:00 – 14:00, arrival from 10:30

MAY

Joint Carers Support Group Meeting
Date: Wednesday 2nd May
Location: 6th Floor, Wellcome Trust, Gibbs Building, 215 Euston Road, London NW1 2BE.
Time: 11:00 – 14:00, arrival from 10:30

FAD Support Group Meeting
Date: Saturday 12th May
Location: The Hub, 5th Floor, Wellcome Collection, 183 Euston Road, London NW1 2BE.
Time: 11:00 – 15:00, arrival from 10:30

JUNE

fFTD Support Group Meeting
Date: Saturday 2nd June
Location: The Hub, 5th Floor, Wellcome Collection, 183 Euston Road, London NW1 2BE.
Time: 11:00 – 15:00, arrival from 10:30

Bereaved Carers Support Group Meeting
Date: Thursday 7th June
Location: The Hub, 5th Floor, Wellcome Collection, 183 Euston Road, London NW1 2BE.
Time: 10:30 – 12:30

PCA Support Group Meeting
Date: Friday 22nd June
Location: 6th Floor, Wellcome Trust, Gibbs Building, 215 Euston Road, London NW1 2BE.
Time: 10:00 – 16:15, arrival from 09:30

JULY

FTD Support Group Meeting
Date: Wednesday 18th July
Location: 6th Floor, Wellcome Trust, Gibbs Building, 215 Euston Road, London NW1 2BE.
Time: 11:30 – 14:30, arrival from 11:00

SEPTEMBER

PPA Support Group Meeting
Date: Thursday 6th September
Location: The Hub, 5th Floor, Wellcome Collection, 183 Euston Road, London NW1 2BE.
Time: 11:00 – 14:00, arrival from 10:30

OCTOBER

PCA Support Group Meeting
Date: Friday 19th October 2018
Location:  The Hub, 5th Floor, Wellcome Collection, 183 Euston Road, London NW1 2BE.
Time: 11:00 – 14:00 arrival from 10:30

 

NOVEMBER

Joint Carers Support Group Meeting
Date: Monday 5th November 2018
Location: The Hub, 5th Floor, Wellcome Collection, 183 Euston Road, London NW1 2BE.
Time: 11:00 – 14:00, arrival from 10:30

 Lewy Body Dementia Pilot Meeting
Date: Wednesday 21st November
Location:  The Hub, 5th Floor, Wellcome Collection, 183 Euston Road, London NW1 2BE.
Time: 11:00 – 14:00 arrival from 10:30

FTD Support Group Meeting
Date: Monday 26th November
Location: The Hub, 5th Floor, Wellcome Collection, 183 Euston Road, London NW1 2BE.
Time: 11:00 – 14:00, arrival from 10:30

JANUARY

PPA Support Group Meeting
Date: Tuesday 8th January 2019
Location: The Hub, 5th Floor, Wellcome Collection, 183 Euston Road, London NW1 2BE.
Time: 11:00 – 14:00, arrival from 10:30

 


Contact Information

For information about attending one of our London support group meetings, or to RSVP, please email Laura at  l.king@wellcome.ac.uk

 

(past event details and forthcoming fundraising/meetings can be found here)



Disclaimer:
Please note that you assume full responsibility and risk in the use of information contained on our website, in our newsletters, at support group meetings and in subsequent correspondence. Our support group based correspondence is generic in nature and we are limited in our ability to offer specific advice via this means. We aim to ensure that all information is as accurate as possible but we accept no responsibility for any errors, omissions or inaccuracies, or for any adverse consequences of any kind arising from the use of support group based content. Our regional group facilitators are volunteers. They may refer to regional facilitator guidelines from RDS but are not governed by RDS. They operate independently and with best intention and you assume full responsibility for your contact and engagement with them and in the regional groups they facilitate. Please see the clinician responsible for your care, a social services representative, or your GP if you have specific needs which require attention. Any medical decisions should be taken in discussion with an appropriate health care professional. Rare Dementia Support is a fund held by The National Brain Appeal (registered charity number: 290173).

Our Commitment to Information Privacy