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Rare Dementia Support offers specialist social, emotional and practical support services for individuals living with, or affected by, a rare dementia diagnosis. Our vision is for all individuals with, at risk of or supporting someone with one of these forms of dementia to have access to information, tailored support and guidance, and contact with others affected by similar conditions. RDS welcomes people from all areas of society affected by a rare dementia regardless of gender, age, marital or family status, race, ethnicity or sexual orientation.

For more information about the rare dementia diagnoses we currently support, please click here

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How we are making a difference

Rare Dementia Support provides holistic support for people living with rare dementias and their families, through one-to-one, small group and large group support services at every stage of a rare dementia diagnosis. We also provide education and training for professionals working with people living with rare dementias, as well as resources to raise awareness and increase understanding, and we pioneer research into individual and group support and into strategies and interventions for people with a diagnosis and their care partners and families.

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The RDS privacy policy is updated regularly. The current version of the privacy policy is available here.