Support Group Meeting Videos

Saturday 13th May 2017 – Joint fFTD and FAD Support Group Meeting

Dr Catherine Mummery, Consultant Neurologist, Dementia Research Centre, spoke about Current Trials in Familial Dementia, Prof Nick Fox, Director of the Dementia Research Centre, led a facilitated discussion on Trial Designs, Prof Sebastian Crutch, Director, Created Out of Mind project, spoke about the Created Out of Mind project: Shaping Perceptions of Dementia Through Art and Science. In the afternoon, members joined the relevant group for a dementia-specific discussion session.


Monday 6th February 2017 – Joint Carers Support Group Meeting

Sara Wilcox, CEO from Pathways Through Dementia, presented at this meeting. Topics which were covered during this meeting included: Paying for Care, the role of the Court of Protection – Lasting Powers of Attorney and Deputyship, Welfare Benefits and relevant community care laws such as the Mental Capacity Act, and the Care Act.


Monday 23rd May 2016 - FTD Carers Support Group Meeting

Dr Ione Woolacott, a neurologist at the Dementia Research Centre, discussed her research at a recent FTD carers’ meeting.


Saturday 30th April 2016 - Joint Familial Alzheimer's Disease and Familial Frontotemporal Dementia Support Group

Professor Pat Sikes and Dr Mel Hall, University of Sheffield, gave a presentation on 'Diagnosis and beyond: children and young people's perceptions of navigating parental dementia'. You can find their slides below.


Dr Jonathan Rohrer, Dementia Research Centre, provided an introduction and background to issues associated with genetic testing in AD/FTD.

Jo Loxton generously provided a very personal account of her experiences of genetic testing.

Alison Metcalfe presented her research on talking to children and young people about Familial Alzheimer's Disease and Familial Frontotemporal Dementia.


Wednesday 18th November 2015 - Joint Carers Support Group Meeting

We held a Joint Carers' Meeting where Dr Liz Sampson who is a Senior Clinical lecturer at the Marie Curie Palliative Care Research Department, Division of Psychiatry, University College London joined us to share her expert knowledge on palliative and end of life care in dementia.


Saturday 25th April 2015 - Familial Frontotemporal Dementia Support Group Meeting 

Phil Cleverley, Chairman of the Association of British Insurers Genetics Panel talked about Life Insurance and the use of genetic information.

Tammaryn Lashley talked about brain donation at Queen Square Brain Bank and what happens after donation.


Adrian Isaacs talked about research into genes that cause FTD.