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LIVING WITH FTD.


Treatment and support:

BvFTD: Unfortunately, there are no medications presently available which can treat the disorder or slow its progression. Treatment therefore focuses on helping people to manage their symptoms, including the behavioural symptoms and treating problems such as mood changes that may contribute to the difficulties that people experience. Medication for behavioural symptoms and mood changes may be needed as the disease progresses.

Receiving a diagnosis of FTD can be isolating and can also have an impact on family members and friends. It can be very useful to join support groups both for those with a diagnosis of FTD and also for their family, friends and/or carers. They can be a great way of accessing information, advice and support from both professionals and also others who have lived experience with FTD.

FTD is a rare dementia and, therefore, relevant support groups may not be so local to you. You can look through our regional groups to see if there is any support local to your area. People with FTD and their friends and family are also more than welcome to join our London based support group meetings. To find out when our next meeting will be taking place please look at the London Meetings section.

For more information on treatment and support for PPA please go to the PPA support webpage.

Lasting Power of Attorney (LPA)

Many people are concerned about how decisions are made if they lose capacity to do so themselves. A Lasting Power of Attorney (LPA) is a legal document which gives the attorney(s) that the person has chosen the right to make decisions on both financial and health care matters in the event they lose capacity to make decisions themselves.

The LPA has two parts; the property and affairs LPA and the personal welfare LPA. It is possible to make both or only one. The LPA gives the person a choice of conferring broad or limited powers to make decisions on their behalf, and a choice of who to appoint. For example, it is possible to appoint relatives to make welfare decisions, but a professional adviser for decisions relating to their property and affairs.

  • A property and affairs LPA gives the attorney(s) the power to make decisions about financial and property matters, such as selling a house or managing a bank account.
  • A personal welfare LPA gives the attorney(s) the power to make decisions about health and personal welfare, such as day-to-day care, medical treatment, or where the person should live.

A personal welfare LPA only ever takes effect when the donor lacks the capacity to make decisions. A property and affairs LPA can take effect as soon as it is registered, even while the donor still has capacity, unless the donor specifies otherwise. The donor can, of course, specify that the attorney may only start managing their financial affairs after they lose capacity, at some time in the future.

Planning for the future is an ongoing process which should start at the time of diagnosis. Health and social care professionals as well as voluntary organisations such as Alzheimer’s Society can provide assistance and further information.