Frontotemporal dementia support group

Recordings

Thursday 2nd March 2017 – Annual FTD Seminar

Our Annual Seminar was held at the Basement Lecture Theatre in Queen Square. Topics and speakers at this event included ‘An overview of FTD’ by Dr Matthew Jones, Consultant Neurologist, Salford Royal NHS Foundation Trust, ‘Sexuality and Intimacy: The impact of a dementia diagnosis’, Dr Jane Youell, Chartered Psychologist and Dementia Specialist, ‘The use of lumbar punctures for the diagnosis of, and research into, dementia and FTD’, Dr Ione Woollacott, Neurology registrar, Dementia Research Centre, UCL, ‘Understanding FTD through blood and spinal fluid measures’, Dr Jon Rohrer, Consultant Neurologist, Dementia Research Centre, UCL, a ‘What’s On Your Mind..?’ A question and answer session Prof. Nick Fox, Director, Dementia Research Centre, UCL, ‘Interaction-focused Life Story Work in Semantic Dementia’, Dr Jackie Kindell Speech and Language Therapist, The University of Manchester and ‘Frontotemporal Dementia: A personal perspective’, Shaheen Larrieux.

Dr Matthew Jones, ‘An overview of FTDpresentation and slides.

Dr Jon Rohrer and Dr Ione Woollacott,  ‘The use of lumbar punctures for the diagnosis of, and research into, dementia and FTDpresentation.

Dr Jackie Kindell, ‘Interaction-focused Life Story Work in Semantic Dementia’, slides.

Shaheen Larrieux, ‘Frontotemporal Dementia: A personal perspective’, presentation.

Recordings from our past annual seminars can be found on the following pages:

 


We have recordings from our London support group meetings below:


Monday 6th February 2017 – Joint Carers Support Group Meeting

Sara Wilcox, CEO from Pathways Through Dementia, presented at this meeting. Topics which were covered during this meeting included: Paying for Care, the role of the Court of Protection – Lasting Powers of Attorney and Deputyship, Welfare Benefits and relevant community care laws such as the Mental Capacity Act, and the Care Act


Monday 23rd May 2016 – FTD Carers Support Group Meeting

Dr Ione Woolacott, a neurologist at the Dementia Research Centre, discussed her research at a recent FTD carers’ meeting.


Monday 25th January 2016 – FTD Carers Support Group Meeting

Bethany Coad is a PhD researcher at Cardiff University and she spoke  to family members about their experiences of empathy changes in FTD and the impact these have had on them and their caregiving experience.


Wednesday 18th November 2015 – Joint Carers Support Group Meeting

We held a Joint Carers’ Meeting where Dr Liz Sampson who is a Senior Clinical Lecturer at the Marie Curie Palliative Care Research Department, Division of Psychiatry, University College London joined us to share her expert knowledge on palliative and end of life care in dementia.

 


Monday 13th July 2015 – FTD Carers Support Group Meeting

We were pleased to welcome Dr Seb Crutch and Emilie Brotherhood, both from the Dementia Research Centre at UCL, to speak at this meeting, about their current research project which involves using virtual reality to capture and measure the subtle – and not so subtle – changes in behaviour displayed by people with FTD.


Thursday 26th February 2015 – Joint Carers Support Group Meeting

We welcomed Dr Eneida Mioshi: Department of Psychiatry, University of Cambridge School of Clinical Medicine, who spoke about coping strategies for carers.


Monday 8th September 2014 – FTD Carers Support Group Meeting

Dr Jonanthan Rohrer presented a talk entitled: “Current and future drug treatment in FTD”