Frontotemporal dementia support group


Recordings from our annual seminars can be found on the following pages


We have recordings from our London support group meetings below:

  • FTD Carers’ Meeting, 25th January 2016

  • Joint Carers’ Support Group Meeting 18th November 2015

  • FTD Carers’ Meeting, 13th July 2015

  • Joint Carers’ Support Group Meeting, 26th February 2015

  • FTD Support Group, 8th September 2014

May 23rd 2016, FTD Carers’ Meeting

Dr Ione Woolacott, a neurologist at the Dementia Research Centre, discussed her research at a recent FTD carers’ meeting.

January 25th 2016, FTD Carers’ Meeting

Bethany Coad is a PhD researcher at Cardiff University and she spoke  to family members about their experiences of empathy changes in FTD and the impact these have had on them and their caregiving experience.

November 18th 2015 Joint Carers’ Meeting

We held a Joint Carers’ Meeting where Dr Liz Sampson who is a Senior Clinical Lecturer at the Marie Curie Palliative Care Research Department, Division of Psychiatry, University College London joined us to share her expert knowledge on palliative and end of life care in dementia.


July 13th 2015 FTD Carers’ Meeting

We were pleased to welcome Dr Seb Crutch and Emilie Brotherhood, both from the Dementia Research Centre at UCL, to speak at this meeting, about their current research project which involves using virtual reality to capture and measure the subtle – and not so subtle – changes in behaviour displayed by people with FTD.


February 26th 2015 Joint Carers’ Support Group meeting

We welcomed Dr Eneida Mioshi: Department of Psychiatry, University of Cambridge School of Clinical Medicine, who spoke about coping strategies for carers.

September 8th 2014 Support Group meeting

Dr Jonanthan Rohrer presented a talk entitled: “Current and future drug treatment in FTD”