Frontotemporal dementia support

Regional Meetings:

Regional contact facilitators provide a voluntary contact service from a position of either personal or professional experience of FTD. They are not employed by the support group but may be able to offer an awareness of regional facilities as well as their personal/professional experience on a voluntary basis for members who so wish to make contact. Some regional contacts also facilitate local meetings. We currently have regional contacts in the following areas and have listed their contact details below:

Scotland: Anne Miller: milleranne89@googlemail.com

Yorkshire: Ann Squires: oakfield77@gmail.com

Northamptonshire: Hilda Hayo: hhayo@talk21.com

Mersey North West: Mary Dawber: dawbers5@btinternet.com

Manchester/ Stockport: Helen Griffiths: helen.griffiths@nhs.net

West Midlands: Ann Johnson: Ann.Johnson@sssft.nhs.uk

Worcestershire: Gill Read, Worcestershire Alzheimer’s Society and colleagues are facilitating the following support group meetings at Worcester Woods Country Park, Wildwood Drive, Worcester, WR5 2LG from 10.30am to 12.30pm:

18th September 2017 – Understanding and Coping with behavioural variant Frontotemporal Dementia (bvFTD)
18th December 2017 – Understanding and Coping with Posterior Cortical Atrophy (PCA) and Understanding and Coping with Rare Dementias Affecting Communication

Each session will have at least one expert speaker plus other professionals from Alzheimer’s Society, Worcestershire Health and Care Trust and others who have many years experience supporting people and families affected by dementia.

Although each session will focus on different types of rare dementia, you are extremely welcome to join us for all of the sessions. You may pick up some useful tips and ideas from hearing speakers on the different topics.

There will also be an optional led walk around the Country Park on each date. Please bring suitable clothing and footwear.

If the focus of the session is not on the type of dementia you or your family experience, you are still very welcome to come along for the walk, peer support and the opportunity to talk with staff and other professionals.

The venue has a lovely café where you could stay and buy a lunch afterwards and maybe spend some time with new friends.

There is free on site parking.

For more information, or to RSVP, please email Gill: worcestershire@alzheimers.org.uk      

Norfolk: Eneida Mioshi, Professor of Dementia Care and Sue Jones, Dementia Specialist Nurse are facilitating the following meetings over the Spring period:

All group sessions will be held in the Norfolk Electronic Assistive Technology Centre (NEAT) and will run from 3 – 4.30pm. The NEAT is located at the basement of the Queen’s Building:

University of East Anglia
Norwich Research Park
Norwich
NR4 7TJ

These meetings are primarily for family carers, but we understand that you may need to bring the person you care for with you. If that is the case, please let us know and we will arrange for their participation in a separate activity.

For more details and to RSVP, please contact Sue: Sue.Jones@uea.ac.uk

Oxfordshire/ Central: Emeline Keown, Young Dementia UKemelinekeown@youngdementiauk.org (working week: Monday, Tuesday and Wednesday).

Birmingham: Pauline Ross: polly.ross@btopenworld.com, or Kirsty O’Dwyer: kross38@hotmail.com

Cambridge: Val Freestone: valerie.freestone@outlook.com

Herts/Beds: Richard Pleydell Bouverie: richard@lawrenceend.com

London: Rob Perry: robertkperry@live.co.uk

Surrey: Claire Robertson: claire.robertson54@gmail.com

The group is always  on the first Tuesday of the month 19:00-21:00, and is held at The Orchard Centre, Longmead Road, Epsom KT19 9RX – Carers only.

Kent/Sussex: Jane Smissen-Bell: 6bells.jane@gmail.com

West Sussex: Jill Butcher: jaybrandonbutcher@gmail.com

The next meeting is Wednesday July 26th, 11:00 at the Beechurst Harvester, Haywards Heath.

Devon: Karen Tapson: Karen.Tapson@alzheimers.org.uk

The next meeting is on Wednesday 13th September 2017 at 12:30 at the Arundell Arms in Lifton (PL16 0AA).

Disclaimer:
Please note that you assume full responsibility and risk in the use of information contained on our website, in our newsletters, at support group meetings and in subsequent correspondence. Our support group based correspondence is generic in nature and we are limited in our ability to offer specific advice via this means. We aim to ensure that all information is as accurate as possible but we accept no responsibility for any errors, omissions or inaccuracies, or for any adverse consequences of any kind arising from the use of support group based content. Our regional group facilitators are volunteers. They may refer to regional facilitator guidelines from RDS but are not governed by RDS. They operate independently and with best intention and you assume full responsibility for your contact and engagement with them and in the regional groups they facilitate. Please see the clinician responsible for your care, a social services representative, or your GP if you have specific needs which require attention. Any medical decisions should be taken in discussion with an appropriate health care professional.