Frontotemporal dementia support

Regional Meetings:

Regional contact facilitators provide a voluntary contact service from a position of either personal or professional experience of FTD. They are not employed by the support group but may be able to offer an awareness of regional facilities as well as their personal/professional experience on a voluntary basis for members who so wish to make contact. Some regional contacts also facilitate local meetings. We currently have regional contacts in the following areas and have listed their contact details below:

Scotland: Alziemer Scotland: info 0131 243 1453


Northamptonshire: Hilda Hayo:

Mersey North West: Mary Dawber:

Manchester/ Stockport: Helen Griffiths: Bi Monthly group meetings 20th July 2018; 16th November 2018

West Midlands: Ann Johnson:

Worcestershire: Worcestershire Alzheimer’s Society and colleagues are facilitating support group meetings at Worcester Woods Country park, Wildwood Drive, Worcester WR5 2LG from  10:30 – 12:30.

Each session will have at least one expert speaker plus other professionals from Alzheimer’s Society, Worcestershire Health and Care Trust and others who have many years experience supporting people and families affected by dementia.

Although each session will focus on different types of rare dementia, you are extremely welcome to join us for all of the sessions. You may pick up some useful tips and ideas from hearing speakers on the different topics.

There will also be an optional led walk around the Country Park on each date. Please bring suitable clothing and footwear.

If the focus of the session is not on the type of dementia you or your family experience, you are still very welcome to come along for the walk, peer support and the opportunity to talk with staff and other professionals.

The venue has a lovely café where you could stay and buy a lunch afterwards and maybe spend some time with new friends.

There is free on site parking.

For more information, or to RSVP, please email      

Norfolk: Eneida Mioshi, Professor of Dementia Care and Sue Jones, Dementia Specialist Nurse are facilitating the following meetings over the Spring period:

All group sessions will be held in the Norfolk Electronic Assistive Technology Centre (NEAT) and will run from 15:00-16:30. The NEAT is located at the basement of the Queen’s Building:

University of East Anglia
Norwich Research Park

These meetings are primarily for family carers, but we understand that you may need to bring the person you care for with you. If that is the case, please let us know and we will arrange for their participation in a separate activity.

For more details and to RSVP, please contact Sue:

Oxfordshire/ Central: Emeline Keown, Young Dementia (working week: Monday, Tuesday and Wednesday).

Birmingham: Pauline Ross:, or Kirsty O’Dwyer:

Cambridge: Val Freestone:

Herts/Beds: Richard Pleydell Bouverie:

London: Rob Perry:

Surrey: Claire Robertson:

The group is always  on the first Tuesday of the month 19:00-21:00, and is held at The Orchard Centre, Longmead Road, Epsom KT19 9RX – Carers only.

Kent/East Sussex: Jane Smissen-Bell:

West Sussex: Jill Butcher:

Meetings usually held on the 4th Wednesday of month at Beech Harvester in Haywards Heath at 11:00 am. Occasionally, they are held at the Amsterdam Pub in Shoreham.

Devon/Exeter: Karen Tapson:


  • Dr Christine Bennetts (Devon):;
  • Liz Lane (Cornwall):
  • Annette (Cornwall):

Cornwall and Devon meetings are held at the Arundel Arms, Lifton, Devon. 12:00 noon – 15:00. The 2018 meetings are 8th March, 3rd May, 12th July, 20th September and 29th November.

UK: Lynne

Lynne assists patients and families to obtain diagnosis and continuing care.


Please note that you assume full responsibility and risk in the use of information contained on our website, in our newsletters, at support group meetings and in subsequent correspondence. Our support group based correspondence is generic in nature and we are limited in our ability to offer specific advice via this means. We aim to ensure that all information is as accurate as possible but we accept no responsibility for any errors, omissions or inaccuracies, or for any adverse consequences of any kind arising from the use of support group based content. Our regional group facilitators are volunteers. They may refer to regional facilitator guidelines from RDS but are not governed by RDS. They operate independently and with best intention and you assume full responsibility for your contact and engagement with them and in the regional groups they facilitate. Please see the clinician responsible for your care, a social services representative, or your GP if you have specific needs which require attention. Any medical decisions should be taken in discussion with an appropriate health care professional.