Frontotemporal dementia support

Links to other organisations

 

Alzheimer’s Research UK

The UK’s leading research charity aiming to defeat dementia.

http://www.alzheimersresearchuk.org (opens website)

Motor Neurone Disease Association

Offers help to anyone living with MND or close to someone who has been diagnosed.

http://www.mndassociation.org/ (opens website)

Progressive Supranuclear Palsy Association

Information about Progressive Supranuclear Palsy and Corticiobasal degeneration.

http://www.pspassociation.org.uk/ (opens website)

FTD talk

A site which provides jargon free research updates on FTD for all people in the FTD community.

www.ftdtalk.org (opens website)

YoungDementia UK

YoungDementia UK is a charity that exists for one reason – to help people whose lives are affected by young onset dementia.

http://www.youngdementiauk.org/ (opens website)

Association for Frontotemporal Degeneration

The AFTD envision a world where frontotemporal degeneration is understood, effectively diagnosed, treated, cured and ultimately prevented and have a mission to improve the quality of life of people affected by FTD and drive research to a cure.

www.theaftd.org/ (opens website)

Younger People With Dementia [Berkshire West]

A web-site for younger people with dementia (people of working age) within Wokingham, Reading and West Berkshire. Publishes up-to-date information about regular events in the area which are relevant to younger people with dementia and their families / carers. There is access to information about the different forms of dementia and how to best cope with any issues which may arise, and there is information about useful local contacts, as well as links to other relevant websites.

http://www.ypwd.info/ (opens website)

Eastern Cognitive Disorders Clinic (ECDC)

The Eastern Cognitive Disorders Clinic (ECDC) was established in 2006 and is based at Box Hill Hospital in Melbourne, Victoria. ECDC is a diagnostic clinic specifically for patients with focal onset dementias and for those with cognitive syndromes that pose diagnostic difficulties. ECDC clinicians have a particular interest and expertise in the diagnosis and management of Frontotemporal Dementia (FTD).

www.ecdc.org.au (opens website)