Posterior cortical atrophy support

Contact details of organisations providing information and support

This page has the contact details of a number of different organisations that may be of help to people with posterior cortical atrophy (PCA). You may also be interested in our page listing support and benefits that people with PCA may be eligible for.


Ability Net

Information on and tools for screen-reading, voice recognition and information technology

Tel. 0800 269545
Email: enquiries@abilitynet.org.uk
Website: www.abilitynet.org.uk

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Age UK

A charity providing services for older people in the UK. Local activities vary from providing advice and information to running day centres, over-60s clubs, transport schemes and home-sitting services

Tel. 0800 009966
Website: www.ageuk.org.uk

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Admiral nurses

A telephone information and support line for family carers, people with dementia and professionals

Tel. 0845 257 9406
Email: direct@fordementia.org.uk
Website: www.dementiauk.org

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Alzheimer’s Society

Provides support through a network of branches, support groups and contact people. A wide range of services are available, ranging from day centres and sitting services to information and advice

Helpline tel. 0845 300 0336 Mon-Fri. 8am to 6pm
Website: www.alzheimers.org.uk

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Alzheimer’s Society Talking Point

An online discussion board run by the Alzheimer’s Society for carers to exchange messages with others who may be in a similar situation

Website: forum.alzheimers.org.uk

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Assist UK

Offers free and impartial advice to disabled people and their carers on disability equipment. Some centres also advise on clothing, footwear and continence management.

Tel. 0870 770 2866
Email: general.info@assist-uk.org
Website: www.assist-uk.org

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At Dementia

This website brings together information about assistive technology that has the potential to support the independence and leisure opportunities of people with dementia.

Website: www.atdementia.org.uk

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CANDID (Counselling And Diagnosis in Dementia

A nurse-led advice and information service for patients and their families attending the Specialist Cognitive Disorders service at the National Hospital.

Helpline tel. 020 3448-3467 Fri 10am-1pm

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Carers UK

Aims to encourage carers to recognise their own needs, to provide information and advice, to campaign for carers and to develop appropriate support for carers. They have a range of useful publications, including an information pack for Young Carers.

Carers Line tel. 0808 808 7777 Mon-Fri 10-12am – 2-4pm
Website: www.carersuk.org

Carers Emergency Scheme (Carers UK)

Operates in most areas allowing carers to draw up and register an emergency plan in case they cannot continue with the caring
Website: www.carersuk.org/search/planning-for-emergencies

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Citizens Advice Bureau

The service has welfare rights workers who offer advice on benefits and enduring power of attorney. They may also have information on grants available for adaptations that you may need in your house.

Tel. 0845 050 5250
Website www.citizensadvice.org.uk

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Independent Age – formerly Council and Care

Independent Age offers regular contact, a strong campaigning voice as well as being able to provide you adn your family with clear, free and impartial advice on important issues (e.g. care, support, money, benefits, health and mobility).

Freephone Helpline: 0800 319 6789 (Monday-Friday: 8am-8pm, Weekends & bank holidays: 9am-5pm)
Website: www.independentage.org

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Department for Work and Pensions

The government department responsible for employment and social security. Its website gives details of the various benefits and how to claim them, and has claim forms available to download.

Tel. 08457 123456
Website: www.dwp.gov.uk

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Department of Health

The government department responsible for health, social care, and the National Health Service (NHS). Provides a range of information and literature, including on help with NHS costs.

Tel. 020 7210 4850 9.00am-5.00pm
Website: www.dh.gov.uk

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DirectGov

The DirectGov website provides information about benefits, details of rates and printable claim forms.

Website: www.gov.uk

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Disability Benefits Helpline

National, free telephone advice and information service on benefits for people with disabilities, their carers and representatives.

Website: https://www.gov.uk/disability-benefits-helpline

Telephone: 0345 605 6055

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Disabled Living Foundation (DLF)

The DLF has two websites with advice and products to make daily living easier.

Website: www.livingmadeeasy.co.uk , www.dlf.org.uk/sara

Tel. 0845 130 9177

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Drivers Medical Group (DVLA)

The section of the DVLA concerned with drivers with a medical condition that may affect their fitness to drive.

Tel. 0870 600 0301 Mon-Thur 8am-8.30pm, Fri and Sat 8am-5.30pm
Email: eftd@dvla.gsi.gov.uk
Website: www.dvla.gov.uk

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Medic Alert®

A non-profit making, registered charity providing identification bracelets or necklets for individuals with hidden medical conditions and allergies. In an emergency, vital information is available on the back of the MedicAlert® Emblem. Medical and emergency personnel can then telephone the given number and by quoting the ID number and after clearing security checks, they can receive further important details where appropriate. For example: name and address, doctor’s details, current drug therapy or next of kin.

Tel. 0800 581 420
Website: www.medicalert.org.uk

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