Posterior cortical atrophy support

Dates of Upcoming Regional Meetings:

8th December 2016, Gloucester – please check back for further information.

Regional Meetings:

Regional meetings provide an informal opportunity to meet other people affected by posterior cortical atrophy (PCA). Currently these take place in Hertfordshire, Peterborough, Berkshire, Oxfordshire, Kent, Gloucestershire, Chichester and Edinburgh/West Lothian:

Hertfordshire Regional Meetings are coordinated by Di Garfield. Please contact her on for more information. The group meets for lunch on the second Wednesday of every month at 1pm. Once a quarter (March, June, Sept & Dec) there is a speaker programme that starts at 11am, followed by lunch. The venue at the Bushey Country Club, High Street, Bushey, Herts (map – opens new window).

Worcestershire: Gill Read, Worcestershire Alzheimer’s Society and colleagues are facilitating the following support group meetings at Worcester Woods Country Park, Wildwood Drive, Worcester, WR5 2LG from 10.30am to 12.30pm:

19th June 2017 – Understanding and Coping with Posterior Cortical Atrophy (PCA) and Understanding and Coping with Rare Dementias Affecting Communication
18th September 2017 – Understanding and Coping with behavioural variant Frontotemporal Dementia (bvFTD)
18th December 2017 – Understanding and Coping with Posterior Cortical Atrophy (PCA) and Understanding and Coping with Rare Dementias Affecting Communication

Each session will have at least one expert speaker plus other professionals from Alzheimer’s Society, Worcestershire Health and Care Trust and others who have many years experience supporting people and families affected by dementia.

Although each session will focus on different types of rare dementia, you are extremely welcome to join us for all of the sessions. You may pick up some useful tips and ideas from hearing speakers on the different topics.

There will also be an optional led walk around the Country Park on each date. Please bring suitable clothing and footwear.

If the focus of the session is not on the type of dementia you or your family experience, you are still very welcome to come along for the walk, peer support and the opportunity to talk with staff and other professionals.

The venue has a lovely café where you could stay and buy a lunch afterwards and maybe spend some time with new friends.

There is free on site parking.

For more information, or to RSVP, please email Gill: or call: 01905 621868 or 07803 116557.  

Norfolk: Eneida Mioshi, Professor of Dementia Care and Sue Jones, Dementia Specialist Nurse are facilitating the following meetings over the Spring period:

All group sessions will be held in the Norfolk Electronic Assistive Technology Centre (NEAT) and will run from 3 – 4.30pm. The NEAT is located at the basement of the Queen’s Building:

University of East Anglia
Norwich Research Park

These meetings are primarily for family carers, but we understand that you may need to bring the person you care for with you. If that is the case, please let us know and we will arrange for their participation in a separate activity.

7th April 2017 – Caring for oneself to care for others, Dr Naoko Kishita
5th May 2017 – Brain changes in rare dementias, Prof Michael Hornberger
9th June 2017 Title: To be confirmed, Sue Jones, Dementia Specialist Nurse

For more details and to RSVP, please contact either Eneida: or Sue:

Peterborough Regional Meetings are coordinated by David and Rose Holmes. Please contact them on either their home number: 01733 253289 or David’s mobile: 07766 341283.

Berkshire Regional Meetings are coordinated by Helen Shepherd. Please email her on for more information. Held in the Barkham Day Hospital, Wokingham Hospital, 41 Barkham Road, Wokingham RG41 2RE (map – opens new window).

Oxfordshire/Central Regional Meetings are coordinated by Martina Wise. The next meeting will be held on Tuesday 4th April 2017 in Goring, RG8. Please contact Martina on or 07958 668 035 for more information.

Kent Regional Meetings are coordinated by Betty Fernee. Please contact Betty on  for more information. Held at the Holiday Inn in Bexleyheath (map – opens new window).

Gloucestershire Regional Meetings are coordinated by Richard Southerden. Please contact Richard on for more information. Held in Stonehouse near Stroud.

Chichester Regional Meetings are coordinated by Fiona Chaabane. Please contact Fiona on for more information. Chichester regional meetings take place on Sundays, in Augusta Court Care Home, Winterbourne Road, Chichester, West Sussex PO19 6TT (map – opens new window).

North West Regional Meetings: North West regional meetings are coordinated by Andy Tysoe. Please Contact Andy on for more information.

Edinburgh & West Lothian Regional Meetings: The  Edinburgh & West Lothian regional meetings take place at Stadium House, 114/5 Alderstone Road, Livingston, West Lothian, EH54 7DN.