Primary progressive aphasia support

Forthcoming London Support Group Meeting Dates

To allow us to make appropriate provisions, we kindly ask you to confirm your attendance at any of the meetings outlined below. To RSVP, please contact Laura.

We kindly ask all members to note that despite our best intentions, it may at times be necessary to change the dates of planned meetings. Therefore, we hope that the below acts as a guide helping you to pencil the dates into your diaries, but we will always give at least a month’s notice with the finalised dates.

2017

DECEMBER 
PPA Support Group Meeting
Date: Friday 8th December
Location: The Hub, 5th Floor, Wellcome Collection, 183 Euston Road, London NW1 2BE
Time: 12:00 – 15:00, arrival from 11:30 (please note the unusual timings of this meeting)

2018

MARCH
FTD Annual Seminar 
Date: Friday 23rd March
Location: 6th Floor, Wellcome Trust, Gibbs Building, 215 Euston Road, London NW1 2BE.
Time: 09:30 – 16:00, arrival from 09:00

APRIL
PPA Support Group Meeting
Date: Wednesday 11th April
Location: 6th Floor, Wellcome Trust, Gibbs Building, 215 Euston Road, London NW1 2BE.
Time: 11:00 – 14:00, arrival from 10:30

MAY
Joint Carers Support Group Meeting
Date: Wednesday 2nd May
Location: 6th Floor, Wellcome Trust, Gibbs Building, 215 Euston Road, London NW1 2BE.
Time: 11:00 – 14:00, arrival from 10:30

JULY
Joint FTD and PPA Support Group Meeting
Date: Wednesday 18th July
Location: 6th Floor, Wellcome Trust, Gibbs Building, 215 Euston Road, London NW1 2BE.
Time: 11:00 – 14:00, arrival from 10:30

 

You would be welcome to attend any of the other support group meetings listed under the FTD support group section of this website. Please get in touch for more information. 


Regional Meetings:

Regional contact facilitators provide a voluntary contact service from a position of either personal or professional experience of PPA. They are not employed by the support group but may be able to offer an awareness of regional facilities as well as their personal/professional experience on a voluntary basis for members who so wish to make contact. Some regional contacts also facilitate local meetings. We currently have regional contacts in the following areas and have listed their contact details below:

Hampshire: Noreen Quarrell: noreenquarrell@gmail.com

Noreen facilitates the Hampshire Regional Support Groups at Odiham Cottage Hospital. Please RSVP to Noreen: noreenquarrell@gmail.com.

Rosemary Townsend, Speech and Language Therapist and CEO of Dyscover, has developed a stepped programme of workshops, courses and follow up sessions  for couples living with PPA. Although this service is currently offered only from their base in Walton on the Hill,  Dyscover is keen to develop outreach services to meet the needs of more people with aphasia. Rosemary will speak about the work she has developed at Dyscover and answer questions about communication problems and solutions.

Norfolk: Eneida Mioshi, Professor of Dementia Care and Sue Jones, Dementia Specialist Nurse facilitate support group meetings in Norfolk. All group sessions will be held in the Norfolk Electronic Assistive Technology Centre (NEAT) and will run from 15:00 – 16:30. The NEAT is located at the basement of the Queen’s Building:

University of East Anglia
Norwich Research Park
Norwich
NR4 7TJ

These meetings are primarily for family carers, but we understand that you may need to bring the person you care for with you. If that is the case, please let us know and we will arrange for their participation in a separate activity.

For more details and to RSVP, please contact either Eneida: E.Mioshi@uea.ac.uk or Sue: Sue.Jones@uea.ac.uk

Totteridge, High Wycombe: The Primary Progressive Aphasia (PPA) Support Group, in association with Buckinghamshire Healthcare NHS Trust, hold support group meeting for people with PPA and their family friends/carers. This meeting is also open to people with other diagnoses of dementia, for whom language difficulties are a primary presenting difficultly.

Jennie Grassly, Speech and Language Therapist, facilitates these meetings at Totteridge Community Centre, Totteridge Drive, High Wycombe, HP13 6UH from 10:30 – 12:00.
For more information and to RSVP, please contact Jennie: Jennie.GRASSLY@buckshealthcare.nhs.uk

Worcestershire: Gill Read, Worcestershire Alzheimer’s Society and colleagues are facilitating the following support group meetings at Worcester Woods Country Park, Wildwood Drive, Worcester, WR5 2LG from 10:30 – 12:30:
18th December 2017 – Understanding and Coping with Posterior Cortical Atrophy (PCA) and Understanding and Coping with Rare Dementias Affecting Communication

Each session will have at least one expert speaker plus other professionals from Alzheimer’s Society, Worcestershire Health and Care Trust and others who have many years experience supporting people and families affected by dementia.

Although each session will focus on different types of rare dementia, you are extremely welcome to join us for all of the sessions. You may pick up some useful tips and ideas from hearing speakers on the different topics.

There will also be an optional led walk around the Country Park on each date. Please bring suitable clothing and footwear. If the focus of the session is not on the type of dementia you or your family experience, you are still very welcome to come along for the walk, peer support and the opportunity to talk with staff and other professionals.

The venue has a lovely café where you could stay and buy a lunch afterwards and maybe spend some time with new friends. There is free on site parking.

For more information, or to RSVP, please email Gill: worcestershire@alzheimers.org.uk.

 

Disclaimer:

Please note that you assume full responsibility and risk in the use of information contained on our website, in our newsletters, at support group meetings and in subsequent correspondence. Our support group based correspondence is generic in nature and we are limited in our ability to offer specific advice via this means. We aim to ensure that all information is as accurate as possible but we accept no responsibility for any errors, omissions or inaccuracies, or for any adverse consequences of any kind arising from the use of support group based content. Our regional group facilitators are volunteers. They may refer to regional facilitator guidelines from RDS but are not governed by RDS. They operate independently and with best intention and you assume full responsibility for your contact and engagement with them and in the regional groups they facilitate. Please see the clinician responsible for your care, a social services representative, or your GP if you have specific needs which require attention. Any medical decisions should be taken in discussion with an appropriate health care professional.