General Advice

We have gathered advice on a range of practical, legal and financial topics that may be of relevance to those affected by rare dementias.

This information is gathered from resources that are freely available and this page is intended to signpost you to the relevant links only. Please visit the individual organisations listed for the most accurate and up-to-date information.  

Other resources available

We’ve provided links below to a number of organisations that offer useful resources and suggestions that people affected by rare dementias may find helpful.

Alzheimer’s Society

Young Dementia UK

FTD Talk

Genetic Alliance UK

Alzheimer’s Research UK

Dementia UK

Age UK

Motor Neurone Disease Association

Progressive Supranuclear Palsy Association

Parkinson’s UK

The Lewy Body Society

AskSARA (Disabled Living Foundation)

Hidden Disabilities