News and Media

Read the latest news stories and blogs from Rare Dementia Support.

Hertfordshire Regional Network Hub meeting highlights

Anthea’s story: Fundraising for Rare Dementia Support

Rare Dementia Support in Japan

World-first dementia centre to be named to honour philanthropic visionaries

Sarah’s story: Receiving positive test results for familial frontotemporal dementia (fFTD)

Our Young Adult Carers Series: Meet Jason, caring for his mum with posterior cortical atrophy (PCA)

Shaping the design of the world’s first Rare Dementia Support Centre

Developing Rare Dementia Support (RDS) services in Japan

RDS CENTRE MILESTONE REACHED 

National clinical research in dementia survey now open

Rare Space cultural programme kicks off

Young onset dementia reconsidered

Inspiring the next generation for careers in rare dementia research  

Charlotte and Nikki discuss World FTD Awareness Week 2024

Rare Dementia Support member is highly commended at BBC awards

The RDS Translation Project

The Jennings vs Alzheimer’s: Shaping a new “treatment era” through discovery

Dementia Awareness Day for the London Chinese Community 

RDS Advert

A new RDS venture: Rare Space

Rare Space Partnership Activities with Sweet Patootee Arts

The Rare Space Garden is now at Exbury Gardens

An update from our RDS Cascaders

Talking Lines creative research update

RDS Champions

Our Rare Space Garden

Focus groups

Everest: conquered!

Rare dementia conversations on BBC Radio 4

Actor Stephen Graham becomes headline supporter for The National Brain Appeal

Channel 4 drama HELP

We have joined forces with the leading dementia organisations as part of ‘One Dementia Voice’

RDS Creativity Club

BBC Radio 4 Appeal for RDS

Supernova interview: in conversation with director Harry Macqueen and RDS member Lori Hayden

Feature film Supernova

Early-stage Alzheimer’s drug approved in the US

Portrayal of FTD in the film Second Spring

Q&A with Rhian Convery about her latest research development, the IGNITE app

Q&A with Dr Aida Suárez-González on the impact Covid-19 has on people living with dementia across the world

Two-part documentary Dementia and Us

Q&A with Dr Jonathan Rohrer on his research in FTD

Impact and mortality of COVID-19 on people living with dementia: cross-country report

Q&A with Professor Nick Fox on his research in FAD

Creative resources