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Welcome to the Frontotemporal Dementia Support Group, a service which is provided by the charity Rare Dementia Support (RDS) to support people affected by Frontotemporal Dementia, FTD. The pages here provide information about FTD, and about our FTD Support Groups, links to FTD Support Group newsletters, and information about our previous and forthcoming FTD Support Group meetings. For information about Rare Dementia Support, visit our homepage.


Frontotemporal Dementia is a form of dementia predominantly affecting cognitive functions such as behaviour and personality, with relatively few memory problems at the outset.

Frontotemporal dementia (FTD) is a group of conditions caused by loss of cells mainly in the frontal and temporal lobes of the brain. The main symptoms are a progressive change in personality and behaviour or progressive deterioration in language abilities.

FTD is classically subdivided into two types:

  1. Behavioural variant FTD (bvFTD)
  2. Primary progressive aphasia (PPA), which includes progressive nonfluent aphasia (PNFA), semantic dementia (SD) and logopenic aphasia (LPA)

It can affect both men and women and usually starts in the 40’s, 50’s or 60’s. However it can also affect older people, and rarely, even younger people.

It was originally described by Arnold Pick in 1892 after whom it was named. Most doctors now prefer to reserve the name ‘Pick’s disease’ for just one of the types of changes in the brain tissue that may be seen with the disease.

We also run a Primary Progressive Aphasia (PPA) Support Group for people with any form of PPA.

More information can be found on the FTD Talk website.




The FTD Support Group is run by a team based UCL Dementia Research Centre (DRC) as part of Rare Dementia Support, a small charity funded by the National Brain Appeal. Click here for the contact details for the FTD Support Group.


Jonathan Rohrer, Consultant Neurologist