Update from the most recent fFTD meeting

Members celebrate at an evening of dementia and music, London
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Our most recent fFTD seminar was held on Friday 27th June 2025, Story Studio, Coram Campus, 41 Brunswick Square, London WC1N 1AZ.

Please see the video below for a recording of the meeting.

00:00:00 Welcome Announcements and Introduction: Nikki Zimmermann

00:02:27 Update on digital health technologies and plans for next stage of GENFI – Amelia Blesius

00:14:11 Clinical Trials update – Sophie Farley 

00:30:24 IWARF update – Ollie Hayes 

00:49:28 Living life with gene update 

00:51:55 RDS service and RDSC update – Nikki Zimmermann

For more information, or if you have any questions, please contact us at contact@raredementiasupport.org

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