In these recording, Richard and Emma answer each other’s questions about posterior cortical atrophy (PCA).
Please note: the recording below includes the discussion of sensitive topics and may be distressing. Please email contact@raredementiasupport.org if you would like to talk to somebody about any of the issues raised.
More about Richard and Emma
Richard: Richard’s wife Lynne was diagnosed with posterior cortical atrophy (PCA) in late 2016, 10 years after she first experienced symptoms. Lynne is now in the advanced stages of PCA and lives at home, where she is cared for by Richard, who has additional support from paid carers. Richard has agreed to take part in this interview in the hope that his experiences caring for his wife Lynne may be able to help others living with or caring for someone with PCA, as well as health and social care professionals supporting people with PCA, and researchers seeking to better understand this condition.
Emma: is a research psychologist at University College London and a specialist counsellor and psychotherapist at University College London Hospitals NHS Foundation Trust. Emma’s research and clinical work is focused on better understanding the lived experiences and support needs of people with rarer forms of dementia like PCA, and developing and delivering tailored support to improve wellbeing. Emma previously co-lead the national PCA support group for a number of years, and continues to be involved with the Rare Dementia Support service delivering psychological support as well as facilitating peer support groups.
