Contact

Contact Information

 

For information, support and advice about a rare dementia diagnosis (including regional support groups) please contact us via:
Email: contact@raredementiasupport.org
Telephone: 07341 776 317  

We can’t always answer the phone straight away, so if you don’t get through please leave a message and we’ll do our best to get back to you (Monday – Friday).

For information about attending one of our support group meetings, or to RSVP, please email Janette.
Email: J.Junghaus@wellcome.ac.uk

For help and support concerning a specific diagnosis please contact:

FAD (Ivanna Pavisic)                         07388 220 323                  fad@raredementiasupport.org

FTD (Jessica Collins)                          07341 776 317                  ftd@raredementiasupport.org

fFTD (Katrina Dick)                            07592 540 555                  fftd@raredementiasupport.org

PCA (Emma Harding)                        07388 220 324                  pca@raredementiasupport.org

PPA (Chris Hardy)                             07388 220 355                  ppa@raredementiasupport.org