Contact us

Subscribe to join our Rare Dementia Support mailing list. This survey will ask you to provide some basic information, and you can select which support group you are interested in hearing more about.

For more information about our work at Rare Dementia Support please email:

For Regional queries please email Roberta McKee-Jackson at

For information relating to a specific diagnosis please contact the members of staff listed below. Please note that phone calls will not be answered immediately, so please leave a voicemail message with your contact information if you would like to speak to somebody on the telephone.