Contact us

Subscribe to join our Rare Dementia Support mailing list. This survey will ask you to provide some basic information, and you can select which support group you are interested in hearing more about.

For more information about our work at Rare Dementia Support please email:

For Regional queries please email Roberta McKee-Jackson at

For information relating to a specific diagnosis please contact the members of staff listed below. Please note that phone calls will not be answered immediately, so please leave a voicemail message with your contact information if you would like to speak to somebody on the telephone.

You can also subscribe to join the Rare Dementia Support mailing list by filling in and sending us the postcards pictured below (made in collaboration with RDS members). If you or your organisation would like some postcards, please


UCL INTEGRATED LEGAL ADVICE CLINIC - Dementia Advice Service Pilot Scheme

If you wish to seek assistance from UCL Integrated Legal Advice Clinic (iLAC), please complete this form to the best of your ability and email it to