Frontotemporal dementia support

Welcome to the Frontotemporal Dementia (FTD) support website.

This site aims to provide information and support to people with FTD, and their families, friends and healthcare professionals.

When faced with the diagnosis of a relatively rare disease in a family member or friend, planning a future for carers is hard. There are few facilities tailored for the younger sufferer, particularly for people with FTD, which adds to the distress and burden that this and other similar diseases cause. We put you in touch with people who understand.

This website has pages explaining what FTD is, providing brain images of FTD and to support carers. The group meets several times a year in the United Kingdom and has an annual seminar open to professionals and carers. You might like to read the quarterly newsletters which are an important way of providing information. These are written by carers and professionals and can be mailed in hard copy or accessed through this website.

Caring for people with FTD is hard, there are few facilities tailored for the younger sufferer and those are not always appropriate for people with FTD. Also there are no specific treatments yet for FTD. All this adds to the distress, isolation and burden of caring. The FTD Support Group (FTDSG) tries to decrease the burden by providing information and support. You can download a flyer (pdf) about the FTD support group.

FTD support incorporates:

There is a specific support group for people with primary progressive aphasia. 

FTD support works closely with the Association for Frontotemporal Degeneration (AFTD), an American group dedicated to the support of people with FTD and their carers. Please also visit their site at www.theaftd.org  for more information.

Other dementias can also lead to behavioural problems, and whilst we are happy to support people wherever possible, information about those other dementias can be found at the links below:

For jargon free research updates on FTD for all people in the FTD community please visit www.ftdtalk.org.

Please contact us for more information or alternatively, view details of regional support contacts near you.

We gratefully accept donations for both the running of the support group and for FTD related research. Details of how to donate to each of these are available on our ‘Donations, Fundraising and Research Fund‘ page.