Our research is aimed at better understanding the lived experiences of people affected by rare dementias in an effort to improve support services and quality of life.

By better understanding the long-term care needs of those affected by rare dementias, and what support mechanisms are most effective, we can help to inform healthcare, training, public health and future research.

Our research is only made possible by continued support and collaboration from those living with rare dementias and their families. If you are affected by a rare dementia, and would like to know more about contributing to research, then please get in touch by emailing research@localhost.