In this series, we film RDS members with lived experience of a rare dementia in conversation with specialist healthcare professionals and researchers. Each conversation will be very different; reflecting the unique experiences of each person taking part. But the common theme here is that by nature of living with, or caring for or about somebody with a rare dementia, all of our participants are experts whose experiences may help viewers in similar situations. By matching each RDS member with an academic or clinical professional, both participants have an opportunity to ask questions that they have always been curious about. We hope that this will generate new knowledge, deeper understanding, and novel approaches to understanding and caring for those living with rarer dementias through the union of professional and lived experiences.

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This project is funded by a Disruption Award generously offered by the Dementia Services Development Trust.