In this recording, Bridie speaks to Claire about her experiences in caring for her husband Joe, who has a diagnosis of Frontotemporal dementia. Please note: the recording below includes the discussion of sensitive topics and may be distressing. Please email contact@raredementiasupport.org if you would like to talk to somebody about any of the issues raised. More about […]
Grief and Loss
In this recording, Julia Tickridge and Jill Walton discuss grief and loss in the context of rare dementia. Please note: the recording below includes the discussion of sensitive topics and may be distressing. Please email contact@raredementiasupport.org if you would like to talk to somebody about any of the issues raised. More about Julia and Jill Julia: A qualified […]
Support for YOAD
We hear from Nikki Zimmermann and Jacquie Nunn about support for those living with young-onset Alzheimer’s disease
Understanding YOAD
Consultant Neurologist, Dr Cath Mummery, RDS Direct Support Team lead, Nikki Zimmermann, and Jacquie Nunn, YOAD Support Group facilitator, along with RDS members Jon and Pippa give an overview of Young-onset Alzheimer’s disease.
Practical tips for managing communication during lockdown
Dr Anna Volkmer, Senior Speech and Language Therapist and co-lead for the RDS PPA Support Group, has prepared the following video for managing communication during lockdown, collated from tips used by members living with Primary Progressive Aphasia (PPA).
Living with diagnoses of Progressive Non-fluent Aphasia and Progressive Supranuclear Palsy
Martin and Nikki Zimmermann answer each other’s questions about Progressive Non-fluent Aphasia (PNFA) and Progressive Supranuclear Palsy.
Living with a diagnosis of mixed primary progressive aphasia
In this recording, Helen speaks to Anna Volkmer about her diagnosis of mixed primary progressive aphasia.
Impact and mortality of COVID-19 on people living with dementia: cross-country report
The first report documenting the devastating effect of Covid-19 on people with dementia across the world
Caring for somebody with semantic dementia as a young adult
In this recording, Jason Warren speaks to Joey about her experiences in caring for her father, who has a diagnosis of semantic dementia. Please note: the recording below includes the discussion of sensitive topics and may be distressing. Please email contact@raredementiasupport.org if you would like to talk to somebody about any of the issues raised. More about […]
