In this recording, Bridie speaks to Claire about her experiences in caring for her husband Joe, who has a diagnosis of Frontotemporal dementia.

Please note: the recording below includes the discussion of sensitive topics and may be distressing. Please email contact@raredementiasupport.org if you would like to talk to somebody about any of the issues raised.

More about Bridie and Claire

Bridie: Bridie’s husband Joe was diagnosed with frontotemporal dementia in 2013. Bridie says that she wants Joe to have the best life possible and wanted to share her experiences in caring for Joe. She says, “there are ways of living with it that I think may help,” and agreed to take part in this recording in the hope that it might help other people in similar situations.”

Claire: Claire is a member of the RDS Direct Support Team, in which capacity she provides support to people affected by a rare dementia. Claire also works as a researcher at University College London, and is part of a team studying the impact of support groups for people affected by rare dementias.”