In this recording, Martin and Nikki Zimmermann answer each other’s questions about Progressive Non-fluent Aphasia (PNFA) and Progressive Supranuclear Palsy.

Please note: the recording below includes the discussion of sensitive topics and may be distressing. Please email contact@raredementiasupport.org if you would like to talk to somebody about any of the issues raised.

More about Martin and Nikki

Martin: Martin is a member of Rare Dementia Support, having received a diagnosis of primary progressive aphasia in January 2019, and an additional diagnosis of progressive supranuclear palsy later that year. Here, Martin talks about his diagnoses, his strategies for coping with both conditions, and his sources of support.  

Nikki: Nikki is the RDS Direct Support Team Lead. She has extensive experience in caring for and supporting people with different forms of rare and younger onset dementia and is passionate about ensuring that all RDS members receive the support they want and need.