In this recording, Valerie Mansfield and Seb Crutch answer each other’s questions about posterior cortical atrophy (PCA).
Please note: the recording below includes the discussion of sensitive topics and may be distressing. Please email contact@raredementiasupport.org if you would like to talk to somebody about any of the issues raised.
More about Valerie and Seb
Valerie: Valerie’s husband, Peter, was diagnosed with posterior cortical atrophy (PCA) in 2015, four years after he first experienced symptoms. Sadly, Peter passed away in 2018, and Valerie has agreed to take part in this interview in the hope that the knowledge she gained in caring for Peter might benefit healthcare professionals, researchers, and other people living with or caring for somebody with PCA.
Seb: Seb is a Professor of Neuropsychology at University College London, and also directs the Rare Dementia Support service. He is a world-leading authority on PCA, and many of the successful research studies that he has led have been triggered by conversations with people affected by PCA at Support Group meetings.
